Friday, April 19, 2013

Cloudy Skies ... but there is still sunshine :)

So as many of you know my husband Shaun has epilepsy. He has reached the point where the medications aren’t doing what they should and his seizures aren’t controlled. Don’t get alarmed they aren’t grand Mal seizures, but still interrupt his daily life. This has taken a toll on both of us. This past week we went down to Salt Lake to see a specialist about the next step we should take. The doctor told us that his seizures would never be cured and that we have exhausted our medication options. So she put him back on the medication that worked the best and ordered an MRI. During the MRI they will look for any abnormalities where the spinal cord connects with the brain. If there is a growth or abnormality there they will be able to remove it surgically which will result in him being seizure free. The doctor said sometimes children are born with a growth or whatever technical term they use for it and it gets passed off as epilepsy unnoticed. The other option if the MRI comes out clear is to have a vagal nerve stimulator put in. this device will sense when Shaun is about to have a seizure and send electric impulses to the brain to stop the seizure. Both options require surgery which is a little scary. On top of all of this Shaun’s ability to succeed in school has dropped, the seizures are inhibiting him to do well in his school work. We are trying to decide what to do school wise. All of this is very confusing I am not sure what God wants us to do at this particular point in our life. We have come to a crossroads and have many decisions that need to be made.  This has been hard but I know with Heavenly Fathers help we can get through this.  I love Shaun with all my heart and this bump in the road won’t make me give up or love him any less. I do not regret marrying him or having the life I do. I know by going through these trials together we will both come out the other side better people. I am grateful for the example my dad has given me. Every day of my mom’s life he stood by her side through the good and the bad through the hardest thing a spouse could deal with, watching your wife slowly die couldn’t be easy or desirable, but he did it and he gave every ounce of his being to help save her.  He taught me to never give up on your love even if they are dying. Now I know Shaun isn’t dying or going through chemo, but he does have challenging health trials and I know that I will never give up because of how I was brought up and I love him to the ends of the earth. Prayers are greatly appreciated.